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Eczema Vaccinatum Patients Needed

 

Have you ever had Eczema Vaccinatum? 

Eczema vaccinatum  is a life threatening reaction to smallpox vaccine. Currently, people with active atopic dermatitis (eczema) or people who have had atopic dermatitis in the past, and the people they live with can not receive smallpox vaccinations.  This is because of the risk of eczema vaccinatum (EV).  

 

About The Eczema Vaccinatum Study

In 1972, U.S. health care providers stopped routinely administering the smallpox vaccine because the world was free of the disease and because of possible risks from the smallpox vaccine itself. Today, however, the possibility exists that an outbreak of smallpox could be caused by a bioterrorist act, which might make smallpox vaccinations necessary again. 

The Atopic Dermatitis and Vaccinia Network (ADVN) is a consortium of academic medical centers that are conducting studies to find ways to make smallpox vaccinations safer for people with atopic dermatitis (AD).

The ADVN needs people who have ever had eczema vaccinatum .  We are seeking individuals 1-80 years old who have atopic dermatitis and who have ever had a widespread herpes virus infection (eczema herpeticum ) and/or eczema vaccinatum.

To find out more about the study, please call 1-888-413-5852, contact the ADVN site nearest you, or send an e-mail to LairsmithJ@njc.org.  

 

Financial compensation is available for qualified participants as well as travel money to an ADVN site.

ADVN sites are: 

      PI:  Donald Leung, MD, PhD, 303-398-1067

      PI:  Jon Hanifin, 503-494-2121

      PIs:  Rich Gallo, MD, PhD and Tissa Hata, MD, 858-657-8390

      PI:  Lynda Schneider, MD, 617-355-6127

      PIs:  Robert Wood, MD and Kathleen Barnes, PhD, 410-614-5467

      PI:  Lisa Beck, MD, 585-275-0374

 

Sponsored by the National Institute of Allergy and Infectious Diseases, National Institutes of Health, Department of Health and Human Services, Contract # HHSN266200400029C

Especially Needed

Individuals with active AD or who have outgrown AD and also have a history of widespread herpes virus skin infection (also called eczema herpeticum), molluscum contagiosum (pearly wart-like skin lesions), or eczema vaccinatum (adverse reaction to smallpox vaccination).

Even though we are enrolling people regardless of race and ethnicity, we have a special need to enroll African Americans in these studies because African Americans may be at a greater risk.  This risk may be related to a different genetic background.

Where Can I Participate?

During the next five years, doctors at the following sites will be conducting clinical studies designed to make smallpox vaccinations safer for millions of people:

Please call 1-888-413-5852 if you have questions.